Bullhorn icon Welcome to Long Covid Studies! For background on this project, please read the about page or this recent article in The Sick Times.

Privacy Policy

Last Updated: April 1, 2024

Long Covid Studies endeavors to carefully steward our users’ data. We’re providing this policy to provide clarity on what data we collect, how we protect it, and what to do if you have questions or concerns.

What data do we collect?

In general, Long Covid Studies strives to reduce the amount of data we collect from users. We do, however, collect data that helps us ensure that the website is running smoothly and helps us understand how it is being used. Specifically, this includes:

  • Operational logs, including URLs accessed and form data submitted by users, are collected by our hosting provider Vercel. Vercel’s privacy policy is here .
  • Web analytics details, including URLs accessed, approximate location, web browser/device details, and referrer, are collected by Vercel Analytics. Details about the data Vercel Analytics collects is available here .
  • Performance details, including URLs accessed, network speed, browser/device details, country, and access timestamps, are collected by Vercel Speed Insights. Details about the data Vercel Speed Insights collects is available here .
  • Payment details, names, addresses, and phone numbers to facilitate donations are collected by our payment provider Stripe. Stripe’s privacy policy is here .
  • Email addresses for newsletter subscriptions, as well as statistics about email views and links clicked, are collected by our service provider Buttondown. Buttondown’s privacy policy is here .

What data do we collect?

Long Covid Studies primarily collects data from users when users submit data via visible web forms, such as the filter form, the donation pages, and newsletter signup form. Other operational data, as listed above, is collected automatically via trackers placed on the pages of the website. A tracker also collects metrics when users click email links to research studies, but does not associate those clicks with individual users or studies. Long Covid Studies does not currently set any first-party cookies.

What are we doing with the data?

Long Covid Studies primarily uses the data we collect to support the full functionality of the website and ensure that it is working properly. We also use the data to monitor the reach and impact of the website. Contact information is used to send email newsletters, and donation information is used to process payments. We will not share or sell your data to third parties other than the service providers listed above or other services providers we use in the future. The data collected is currently stored in perpetuity.

How can customers control their data?

If you have any questions about your data, wish to unsubscribe from our newsletter, or have any other data concerns please contact Long Covid Studies at info@longcovidstudies.net .

How is the data protected?

Long Covid Studies uses industry-standard best practices to protect your data. Payment data, in particular, resides on Stripe’s industry-leading secure system. All other data is secured at our service providers and access is limited.